Back in January, the doctors discovered the metastatic breast cancer had found it's way into my brain fluid, and my skull as well. This left Mike and I terrified and our families worried of course. I underwent 2 weeks (10 rounds) of whole brain radiation, 5 minutes per treatment 5 days in a row for 2 weeks. In the midst of this treatment, I found info on Facebook from a new oral chemo with a common name of VERZENIO. I did some research on this and consulted with my oncologist whom agreed it sounds like something worth trying out. As when I was told the cancer in my brain (leptomenogial metastasis) I was told most patients with this, survive 2-3 months with the radiation...we obviously wanted better results.
I began the Verzenio upon completion of the radiation and am happy to report that I have surpassed the 3 month timeframe... as it is Apr 26 now. I do have some minor side effects but no idea if it is from the radiation or the chemo pills... My parents would be celebrating 71 years of married life today if they were still here. May 8 will mark 8 years living with MBC and the 17th will be 10 years that WE have been married. Dates I look forward to seeing pass by me.. This May will also mark 18 years since my initial diagnosis of Stage 2 DCIS Breast Cancer for which I underwent a lumpectomy with 11 lymph nodes removed and all tested negative. I also had 4 sessions of Adryamacin Cytoxon iv chemo and 2 months of daily radiation therapy.
. My grand daughter has started little league softball already, and is pitching this year. I really look forward to watching her kick some opponent butt from the pitchers mound this year, she's worked so hard at this!! She has had the hardest time with grandma's illness. I NEED TO BE THERE FOR HER!!
Yesterday, a hospital bed was delivered to our home for me to set up in the living room to allow me better sleep. I have only the top lobe of my right lung functioning from the several drains last year when cancerous fluid filled my lung. Fortunately, just the right lung and not the left. I have a visiting nurse coming weekly and we are looking into assistance for a new ramp and some other help around the house.
We have been making plans for the inevitable, which is not very easy...but must be done. We are not planning a typical funeral, as anyone whom knows me knows I don't do anything typical... in life or death! I am planning to donate my remains for further MBC research via the University of Michigan MLTP program (Michigan Legacy Tissue Program) and rather than a mourning funeral, have a celebration of life ceremony we are hoping to hold at what I refer to as MY CHURCH... home of the Arsenal of Democracy, Yankee Air Museum.
As for my merchandise in my webstore, all items will be forwarded on to METAvivor Research and Support Inc. for them to sell and apply the profits toward research and engineering for Metastatic Breast Cancer in my name. In the mean time, if you'd like to place an order from the store before it closes, we will still forward 30% to METAVIVOR and the balance will help us with our finances in the mean time. The website of course; https://www.tlcgardensandcrafts.com Donations will be able to be accepted on the website as well if you are not interested in product.
Thank YOU for your years of support. YOU all have made this life with cancer more livable. I've met so many wonderful people both online and in person via events. My husband Mike may or may not continue this page with his own crafts and other findings from metal detecting or whatever... but please, I ask that you pray for him and my family when I am gone, and support them with your love and prayer. THIS is the most difficult time of my 55 years... I had scans run on Monday and will learn next week what the outcome has to say. I will do my best to update you all here. Thank you and GOD BLESS.
TLC Teri Hagen-Cranson