Been a busy week for Mike and I. Saw my pain mgmt team Monday, sadly the things she wanted to have me take to help w/ nausea and appetite are not covered items. Looking into alternative choices and an appeal... GI doc today, scheduled a followup for JULY with full intentions of seeing me then. Said scan of abdomen / intestines and other GI areas seem fine, but they would have had other procedures done to look for specific issues for his clinic so can't say for sure, keep doing what I'm doing and I got my Buckwheat Honey he recommended to soothe the cough/tickle that causes it. Had some tonight.
TOMORROW-THURSDAY: THAT will be Scan Reveal and bloodwork day. THIS is the day we've been waiting for. I will insist on seeing each scan and having them explained to me as thus far, I have not seen any imaging with the fill in doctor... I am a patient that benefits by seeing the images and it is my right! I've surpassed the estimated 2-3 months we were told in early January before the brain radiation took place (Leptomeningeal Metastasis ) thanks to my discovery of this new oral chemo; VERZENIO. Yes, the side effects are not pleasant, but if it's gonna kill off the cancer cells and give me MORE TIME with my family and loved ones... I'll take it! Our grand-daughter is just starting her Softball season as a 7th grader and is pitching this year! I've made it to one of two games thus far and though it exhausted me, I also felt empowered by the experience. Her next game is this Saturday, and I cannot WAIT to be there!! This is a photo of her on pitchers mound about to strike out the batter.
WE managed to get my WILL completed while dropping off my yearly forms at DHS in Inkster of all places! A kind employee saw me looking for something on the kiosk in the lobby and approached me, inquiring what specifically I was looking for. So I told her, I have end stage cancer and need help filling out and filing a Last Will and Testament. She escorted us to her office, said a prayer with us and said something told her to approach me. She had pulled the form up on her screen earlier and did not know why...until she saw me. She proceeded to fill out the document and printed out two copies for us explaining what to do with them next. Thank you to Ms. S. Jones at DHS in Inkster, God Bless that woman! She told us that I am a strong fighter and not going anywhere anytime soon, and that Mike is not ready to loose me, and does not need to worry that it will be too soon. She said that God told her to approach me and help me with my task. It was an unbelievable experience that neither of us will ever forget.
With that, I still have not heard from the mortgage company, will call them on Friday if no letter. Reps from Senior Alliance will be here that day to discuss what they can do to help us with a new ramp, chore service provider, and other such things. I will admit, it seems odd to have to reach out to so many for help with so much. But I am humbled that these services are available to folks like myself that are facing the possible end of life, with minimal financial resources. All these years we did not know this existed, I don't think they do yard work however...so will have to find someone to help with that, it's a bit of a mess right now and anyone that knows me, knows that is not sitting well with me!! I keep a meticulous yard... and it is anything BUT that right now. Damn Maple Tree seeds are taking over the lawn and flower beds. I hate those things! The birds however, are enjoying the tree coming into bloom with fresh foliage, the Goldfinches are almost able to hide in the bright green baby leaves. Life goes on around us, even as we are facing our own death...The birds are mating and preparing their nests, they are feeding one another at the feeder, so sweet to watch them! A nest of baby bunnies was found under a pile of leaves in my neighbors backyard yesterday, so she built a barrier to protect them from the neighborhood cats, and the kids too... flowers are blooming and pollen is filling the air... and all I can think is... what will I learn in 14 hours from now?
THIS my friends, is what we call SCANXIETY. It's a two Klonopin night for this old lady... and an additional prayer before lights out. Thanks again to everyone that is helping us out along the way. I got two adorable sets of sheets in the mail this week for my new hospital bed, and we picked up some hi-density foam to help make it more comfortable with the help of donations to pay for it. Thankfully, it was 50% off at JoAnn's and I had more coupons that made it even more affordable. I am sleeping better now on the bed, but would much rather be able to cuddle up to my husband and not have a care in the world, as we are looking at our TENTH WEDDING ANNIVERSARY in just two weeks!! Had I not been so ill, I'd have loved to do a vow renewal party, I'd bet my dress is too big on me with all the weight I've lost here lately... Oh well, Will be blessed to pass my 8 year cancerversary on the 8th, which is also my stepson's Birthday, and on the 17th, we'll see where that takes us...our TEN YEAR WEDDING ANNIVERSARY, something I feared I'd never see when this diagnosis was handed to me 8 years ago. My Stepbrother wants to take us to Mackinac Island, while I've never been, I don't think I'd have the strength to enjoy it :(
Until tomorrow when we get those results.... Stay tuned - keep those prayers coming! tlc God Bless!